CultureBy Stephanie Werner · August 2026 · 10 min read

Why Many Americans Avoid Talking About Death

What research says about death anxiety, gaps in end-of-life planning, and practical ways to make the subject easier to face.

Old gravestones stand among bare trees in a foggy cemetery

In 2023, the National Funeral Directors Association reported that the median cost of a funeral with viewing and burial was $8,300, excluding cemetery costs [3]. The median cost of a funeral with viewing and cremation was $6,280. In a 2025 Caring.com survey, 76% of surveyed U.S. adults didn’t report having a will [2].

Those figures describe a practical gap. Families can face significant funeral and legal decisions even when no written plan exists. The reasons include discomfort, cost concerns, uncertainty about where to begin, and the belief that planning is only for people with substantial assets.

American attitudes toward death aren’t uniform. History, healthcare, religion, culture, family experience, and access to planning resources all shape how a person approaches it.

What Actually Reduces Death Anxiety

The death positive movement's core claim, that engaging with death makes it less frightening, is testable. It’s been tested.

A 2018 meta-analysis in the Journal of Anxiety Disorders pooled 15 randomized controlled trials of psychological interventions for death anxiety [8]. Overall, the interventions worked, with a small to medium effect. One approach stood apart: cognitive behavioral therapy produced a large effect compared to control conditions, while other therapeutic approaches produced almost none [8].

The authors flagged the limits themselves, few trials and generally low study quality, but the direction is consistent. Structured confrontation with death reduces the fear of it.

CBT treats death anxiety the way it treats other fears. You identify the specific thoughts underneath the dread (dying will be agony, my family will fall apart, I will be forgotten), you test them against evidence, and you practice exposure: reading about death, writing about it, sitting with it on purpose instead of fleeing it.

Cleveland Clinic lists CBT and exposure therapy as the primary treatments for thanatophobia, and notes that medication hasn’t proven effective against the phobia itself [7]. Anti-anxiety drugs can blunt panic at a funeral. They don’t treat the fear.

Outside a therapist's office, the same mechanism is available for free. Exposure is what a death cafe is. It’s what this article is. It’s what the conversation with your family about your wishes is. Each contact with the subject, made on your own terms and in a calm state, lowers the alarm it triggers.

And planning is exposure that leaves something behind. Completing a will or an advance directive requires hours of direct contact with your own mortality, and it ends with a document your family will need.

If your fear of death is the ordinary kind, the path is the one this article describes: stop avoiding the subject. If it’s a phobia that runs your decisions and your sleep, see a therapist who practices CBT. That’s the treatment with evidence behind it.

Thanatophobia: When Fear of Death Gets a Name

Fear of death is common. Psychologists call the nonclinical version death anxiety. It can surface after a diagnosis, after someone close dies, or without an obvious trigger, then recede.

Thanatophobia is the clinical name for the fear that doesn’t recede. The word comes from Thanatos, the Greek personification of death. Clinicians class it as a specific phobia, a type of anxiety disorder, when the fear meets defined criteria: it persists for six months or more, it triggers immediate panic when death comes up, it drives avoidance, and it interferes with daily life [7].

The physical symptoms are the ones panic always produces: heart palpitations, sweating, nausea, shortness of breath, trembling [7]. The psychological symptoms are dread, depression, and obsessive checking of one's own health. People with thanatophobia skip funerals, skip checkups, and change the subject. The avoidance is the diagnostic core. The fear is running the person's decisions.

If you’re asking why you’re afraid of death, the honest answer is that you’re a person who knows they will die. The psychologists behind terror management theory, Sheldon Solomon, Jeff Greenberg, and Tom Pyszczynski, argue that much of human culture exists to keep that awareness at a tolerable distance [1] [5]. The fear isn’t a malfunction. It’s the standard condition of a mind that understands its own ending.

The distinction between the two matters because the responses differ. Ordinary death anxiety responds to the things this article describes: information, conversation, planning. A phobia that’s reorganizing your life responds to treatment. If fear of death is keeping you away from hospitals, doctors, or sleep, that isn’t a character flaw. It’s a treatable anxiety disorder.

What the Planning Data Shows

Surveys and research show a persistent gap between the number of adults who say end-of-life planning matters and the number who complete the documents.

Caring.com's 2025 survey asked people without a will why they didn't have one. Forty-three percent said they had not gotten around to it. When combined with respondents who believed they didn't have enough assets to need one, those answers covered 56% of people without a will or trust [2]. The responses point to delay and a common belief that estate planning is only for larger estates.

When someone dies without a will, state intestacy law determines who inherits probate assets. The formula varies by state and may produce a different result from what the person would have chosen, especially for unmarried partners, blended families, and estranged relatives.

Beyond wills, the numbers on advance directives are even more stark. A review of 150 studies covering nearly 796,000 people found that 36.7% of US adults had completed any kind of advance directive, and only 29.3% had a living will [9]. This means that when a medical crisis occurs, and for most people, it eventually will, the people who love them are left guessing what they would have wanted.

Where the Fear Comes From

Death practices and attitudes differ across countries and within every culture and religion. In the United States, several historical changes moved much of death care away from the home and into professional and medical settings.

Before the Civil War, death was largely a domestic affair. People died at home, were prepared for burial by family members, and were laid out in the parlor for viewing [4]. Death was visible, present, and integrated into daily life. Children grew up understanding that people died, because they saw it happen.

The Civil War changed this. The scale of death, an estimated 620,000 men [11], created a demand for embalming and professional body preparation that hadn't existed before. Funeral homes emerged as a profession. Death began to move out of the home and into institutions.

By the mid-20th century, the medicalization of death was nearly complete [4] [6]. People died in hospitals instead of at home. Bodies were prepared by professionals instead of family members. The language of death softened: people "passed away" or "went to a better place." Grief became something to be managed and overcome rather than experienced and integrated.

Some scholars describe the result as "sequestration," meaning that death became less visible in everyday life and more often managed in specialized settings. That history helps explain discomfort with the subject, though individual and community experiences vary.

Why Funeral Price Comparison Is Hard

Funeral arrangements are often time-sensitive, emotionally difficult, and unfamiliar. Those conditions can make it hard to compare providers and understand which charges are required for the arrangement a family wants.

The Federal Trade Commission's Funeral Rule gives consumers specific rights. Providers must answer price questions by phone, give an itemized General Price List during an in-person arrangements discussion, and provide a written statement of the goods and services selected [10]. Consumers may choose individual items, subject to the provider's permitted basic services fee and any documented legal or cemetery requirement.

Prices and included services can differ between providers. Compare the total cost of the same arrangement, ask which charges come from the funeral home and which come from a cemetery or outside vendor, and get the final itemized statement in writing.

The Funeral Rule also requires a provider to accept a casket or urn purchased elsewhere without charging a handling fee [10]. The provider must give you a Casket Price List before showing caskets. Those rights allow families to compare merchandise without making assumptions about any individual provider.

What Death Avoidance Actually Costs

The financial cost of dying unprepared is real and measurable. The National Funeral Directors Association puts the median cost of a funeral with viewing and burial at about $8,300, excluding cemetery costs [3]. Then probate may add court fees, attorney costs, and executor expenses. In states with statutory fee schedules, compensation may be set by law.

California, for example, provides that the personal representative and the estate's attorney may each receive 4% of the first $100,000, 3% of the next $100,000, and 2% of the next $800,000, subject to the statute and court process [12]. Disputes may add further costs.

But the cost of death avoidance isn’t only financial. It’s also relational and psychological.

When someone dies without expressing wishes for medical care, funeral arrangements, or the estate, other people have to make those decisions with limited guidance.

Uncertainty can add emotional strain during grief. Written preferences don't remove every hard decision, but they can reduce the number of questions family members must answer on someone else's behalf. Our guide to prolonged and complicated grief explains when grief symptoms may need specialized support.

The Death Positive Movement

In the last decade, a counter-movement has emerged. The death positivity movement, associated with figures like mortician and author Caitlin Doughty, whose book Smoke Gets in Your Eyes became an unlikely bestseller, argues that our cultural avoidance of death isn’t just uncomfortable but actively harmful.

Death cafes, informal gatherings where strangers meet to talk about death over coffee and cake, have run in 100 countries [13]. Death doulas, who provide non-medical support to the dying and their families, are a growing profession. "Death literacy", the ability to understand and navigate end-of-life systems, is increasingly discussed as a public health issue.

The movement's core argument is simple: talking about death doesn’t make it more likely. It makes it less frightening. And it makes the practical realities of dying, the paperwork, the decisions, the conversations, manageable rather than catastrophic.

What Changes When You Stop Avoiding It

Planning doesn’t eliminate grief or guarantee that death will feel less frightening. It can replace some uncertainty with documented decisions.

You don’t have to become a death positive activist or study mortuary science. Start with one practical step: write or update a will, complete an advance directive, review beneficiary designations, or tell your family what kind of care and funeral you would want.

The time and cost depend on the documents and the complexity of your situation. A completed plan gives the people who may act for you clear information they can use.

Sources & References

Research & Citations

All factual claims in this article are sourced from peer-reviewed research, government data, and named institutions. Citations follow APA 7th edition format.

  1. [1]Becker, E. (1973). The denial of death. Free Press.
  2. [2]Caring.com. (2025). 2025 wills and estate planning study. ↗ Source Retrieved July 2, 2026
  3. [3]National Funeral Directors Association. (2023). 2023 NFDA General Price List Study. ↗ Source Retrieved August 7, 2026
  4. [4]Kastenbaum, R. (2012). Death, society, and human experience (11th ed.). Pearson.
  5. [5]Solomon, S., Greenberg, J., & Pyszczynski, T. (2015). The worm at the core: On the role of death in life. Random House.
  6. [6]Kübler-Ross, E. (1969). On death and dying. Macmillan.
  7. [7]Cleveland Clinic. (n.d.). Thanatophobia (fear of death). ↗ Source Retrieved July 16, 2026
  8. [8]Menzies, R. E., Zuccala, M., Sharpe, L., & Dar-Nimrod, I. (2018). The effects of psychosocial interventions on death anxiety: A meta-analysis and systematic review of randomised controlled trials. Journal of Anxiety Disorders, 59, 64–73. https://doi.org/10.1016/j.janxdis.2018.09.004 ↗ Source Retrieved July 16, 2026
  9. [9]Yadav, K. N., Gabler, N. B., Cooney, E., Kent, S., Kim, J., Herbst, N., Mante, A., Halpern, S. D., & Courtright, K. R. (2017). Approximately one in three U.S. adults completes any type of advance directive for end-of-life care. Health Affairs, 36(7), 1244–1251. ↗ Source Retrieved July 29, 2026
  10. [10]Federal Trade Commission. (n.d.). The FTC Funeral Rule. Consumer Advice. ↗ Source Retrieved August 1, 2026
  11. [11]American Battlefield Trust. (n.d.). Civil War casualties. ↗ Source Retrieved August 7, 2026
  12. [12]California Probate Code §§ 10800, 10810. California Legislative Information. ↗ Source Retrieved August 7, 2026
  13. [13]Death Cafe. (n.d.). What is Death Cafe? ↗ Source Retrieved August 7, 2026

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